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International Fibrodysplasia Ossificans Progressiva Association

The IFOPA is partnering with Innocentive to accelerate research, support families, and find a cure for FOP

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What is FOP?
One of the rarest, most disabling genetic conditions known to medicine, Fibrodysplasia Ossificans Progressiva (FOP) causes bone to form in muscles, tendons, and other connective tissues where it does not below. Bridges of extra bone develop across joints, progressively restricting movement and imprisoning the body.

The International Fibrodysplasia Ossificans Progressiva Association (IFOPA) is driving patient-centric research and development (R&D) to change the lives of those with FOP and their families. As the largest nonprofit funder of FOP research, the IFOPA is finding innovative ways to build upon our history of success in supporting important findings in the progression of the disease, identifying viable drug targets, and de-risking clinical development programs to promote their handoff to pharmaceutical partners. The IFOPA also provides hope to individuals with FOP and their families through education and support programs while funding research to find a cure for FOP. Learn more at ifopa.org/

For 35 years, the IFOPA has funded gifted research teams around the world. To ensure that the patient experience is a part of disease understanding and clinical trial design we support real-world evidence activities and organize opportunities for researchers and pharmaceutical companies to hear patient insights.

Using open innovation and crowdsourcing, the IFOPA hopes to accelerate research, develop improved measurements of FOP progression, and enhance outcomes for those affected by the disorder.

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What Challenge will you solve today?

Donate to the IFOPA

Your generous support will help the IFOPA to continue funding research, supporting individuals and families, and raising awareness.

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Raise awareness

The impacts of FOP are devastating. Help us raise awareness.

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Sign up for the IFOPA’s newsletter: FOP Connection – Stay updated on the latest programs, opportunities, and results from the IFOPA.

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The IFOPA welcomes innovative ideas and submissions from individuals, the public and private sectors, and scouts to solve Challenges in the areas of FOP treatment, management, and more.

Will you join us?

The International Fibrodysplasia Ossificans Progressiva Association (IFOPA) is driving patient-centric research and development (R&D) to change the lives of those with FOP and their families.

Industry

Medical nonprofit

Headquarters

USA

Total Challenges Run

1

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4

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